The Cure
There’s a lot of research going on right now in the diabetes
world. There are new blood sugar meters coming out that let you scan a thing on
your arm and give you your blood sugar (this link explains that much better
than I just did: http://www.freestylelibre.com.au )
There are studies into what virus might have triggered type
1 and there are studies into whether the beta cells in the pancreas are just
dormant rather than dead.
All very cool stuff! Anything to make management easier is
awesome in my book. I want a machine or app thing that lets you take a photo of
food and gives you a carb count that’s 100% accurate because my maths is dire.
But a lot of these research projects talk about a cure. This
elusive cure is brought up a lot. When I was diagnosed there was talk of it
happening in the next ten years. We’re on year 6 now. I’ve heard from others in
the DOC (diabetes online community) that they were told that as well. Thing is,
they were diagnosed decades ago. It’s always another ten years, then another,
then another.
I’ve read a few posts on where people stand on this and how
they feel about a cure. I think my views have changed over time.
When I was diagnosed I was in denial about it all and
thought that they had the diagnosis wrong. I had this little idea in my head
that they had the wrong type of diabetes or the wrong disease. I thought that
whatever I had could be cured. No one ever said that! But I just couldn’t quite
get my head around it at first and that made me feel better. When you’re 14
finishing high school seems like an eternity away. The rest of your life is
just too much to think about.
Once I did accept that no, I did in fact have type 1 and
that I would have it forever, my ideas on a cure changed. When you’re at that
age you’re shifting around a lot, or at least I was. I wanted to know exactly
who I was and this new diabetes thing gave me a label. Sounds a bit crazy, but
I liked having a label. Did I like my diabetes? Of course not. But I used to
wonder if a cure came around, would I accept it straight away? If I lost my
diabetes, what would happen to the rest of me? I’d kind of connected myself to
my condition because that was a clear and simple thing to do.
Now I’m a bit older I’ve got a better idea of who I am.
We’re still not quite concrete on everything, but who in their 20s is certain
about every aspect of themselves? Who is 100% set in stone at any age? We
change constantly because we learn constantly. But with those few years and a
little more idea about myself, I see myself as a lot more than a diabetic. Yes,
I’m diabetic. I’m also a whole lot of other things! I do think my diabetes has
a part in quite a bit of my worldview and personality but it definitely isn’t
the key factor. So now if you ask me about a cure I can say two things.
1) If it happened I’d take it in a second.
2) I don’t think it’s going to happen.
I think technology will continue to improve. I think that
this technology will make management easier. Maybe one day there will be some
kind of implant that basically functions without me being too involved.
But I will still have diabetes.
I think they will find a prevention, or at least I hope they
do. I think they will be able to diagnose people at risk much earlier through
genetic markers.
I think they will be able to even stop new cases occurring.
But I don’t think they can cure me. Maybe there will be some
transplant, but that will probably have to be maintained and one medication
will be substituted for another. It’s also far more profitable to treat a
condition than cure a condition.
Sure, maybe I’m just a cynical pessimist. I don’t know what
science will look like next year, let alone in decade’s time. But right now I
think “the cure” isn’t something to hang out for. I hope they prove me wrong.
100% agree with you bec. I don't think there will be a cure in my lifetime but I'm hopeful for better management technology.
ReplyDeleteGlad I'm not just cynical! I think we will definitely get better tech, it's changing so much already.
DeleteI have never thought there would be a type 1 cure for me. However I hope for a cure for my three grandchildren if they are ever diagnosed and expect one for their children if they are diagnosed. I think my mother (a type 1) would have said the same. By the way did I mention the 5 year.....ah cure?
ReplyDeleteI referred your blog to the TUDiabetes blog page for the week of March 3, 2016. I hope doing so will bring additional readers to your wonderful blog.
I think you may be right, it will be a few generations away (hopefully everyone isn't soon saying that like a broken record!)
DeleteThank you, that's very kind of you!